Advance care planning gives you a voice in your medical care and lets you designate someone to speak for you, if you cannot speak for yourself. This helps guide treatment decisions by doctors and nurses and streamlines important decisions. This is all the more important during the COVID-19 pandemic.
- Dr. Elizabeth Clayborne, an ER physician at the University of Maryland Prince George’s Hospital Center, says anyone, even young people, can make an advance care plan
Dr. Elizabeth Clayborne is an ER physician at the University of Maryland Prince George’s Hospital Center, and offered her first-hand account of treating coronavirus patients.
“We’re very busy. We definitely in the last week have seen an increased number of acutely ill patients, people coming in, respiratory distress,” Clayborne said.
“Right now, we’re really bracing ourselves for the storm that we think is coming upon us. We’re currently seeing an increased number of COVID positive patients,” she said.
Clayborne is treating coronavirus patients amid a staff shortage and says she will continue to work for as long as she can.
“It’s definitely scary being a pregnant mother. I also have a young daughter, a 17-month-old, at home. So every time I come home I am taking a risk,” she said.
Clayborne said she wanted to share her perspective as a doctor on the front lines to urge people to make a plan for how they want to be treated if they become critically ill.
“I really wanted to bring some awareness to some important topics that haven’t been as well covered in the media, that are really being highlighted by this crisis, and that is advanced care planning and for people to start thinking about, what they would want done if they become acutely ill,” she said.
She says anyone, even young people, can make an advance care plan.
“Make sure it is clear and specific, you don’t want your family to be burdened trying to make decisions for you in a crisis,” Clayborne said.
To make a plan, go to cdc.gov to search online resources for advance care plans that are state-specific or go to MyDirectives.com.
By Dr. Michael Wasserman
Texas Lt. Gov. Dan Patrick recently suggested older adults should sacrifice themselves amid the COVID-19 pandemic. This brings forth my greatest fear: that ageism in society will lead leaders and others to look the other way while we die of preventable causes in large numbers.
Patrick must not talk to his grandchildren very much. If he did, he would know that they want his love and not his money. Our society is being given the ultimate ethical test.
Would I forgo my own life to save the life of my grandchild? I would. Would I offer my life for the economy, as they claim? You’ve got to be kidding me.
This is America. While we believe in the free market, we also believe in each other. To throw in the towel at this early stage of the pandemic and offer older adults to the altar of COVID-19 is unconscionable.
The important question for anyone over the age of 60 isn’t whether they want to sacrifice their lives, but whether or not they’ve created and shared an advance care plan. That means making our own personal, individualized choices regarding our health.
Those choices are usually related to how we feel about our cognition, function and quality of life. For instance, I may want my family and my health-care providers to know that if I can no longer recognize my family or continue my love of writing, I wouldn’t find value in my life.
Or, to put it in current terms, if I’m at that level of cognitive function and I get hit with COVID-19, then keep me comfortable. Don’t send me to the hospital and above all, don’t waste valuable ICU resources on me.
That’s not just me. It also happens to be the overwhelming majority of the patients whom I’ve cared for over my 32-year career as a geriatrician.
But someone else may well choose to “have everything done,” as is their right. To repeat: This is America. We’re not supposed to ration health care here. During debate over the passage of the Affordable Care Act, the very notion that we might have “death panels” lit conservatives’ hair on fire.
So we all have a right to say how we want our health managed as we get up there in years. We just have to make it clear.
The good news is the government has actually encouraged physicians and health systems to offer advance care plans to patients. Unfortunately, there’s been little public education about creating one.
There are digital platforms like MyDirectives.com that make it easy to do, and at no cost. Because we are isolating older adults to protect them from the virus, the need for an advance care plan to be readily available through the internet is critical.
Such a plan is not a means to avoid treating an older adult. It’s a means to assure that our health-care wishes are heard. It’s a way to assure that we’re treated with dignity and respect.
What I am fearful of in our society is that ageism will define the care that is delivered to older adults in the coming weeks and months. If an older adult gets COVID-19, starts getting short of breath and ends up in an emergency room, what should happen? Right now there are three scenarios.
If I have an advance care plan filled out and available to the emergency room doctor, and my wishes are to not be put on a ventilator if a poor outcome is expected, then I expect to be treated with palliative and hospice care for comfort.
If I don’t have an advance care plan, and the emergency room doctor assumes that I want everything done, I may end up on a ventilator with prolonged suffering until I die.
Alternatively, because I’m old, I could be assumed to have little value to society, or less value than someone younger than me, and be “allowed” to die.
That is not the health-care system that I was trained in. That is not consistent with the Hippocratic Oath, or the country I love.
Wasserman is a geriatrician and president of the California Association of Long Term Medicine.
View the op-ed in New York Daily News here.
Amid the growing COVID-19 pandemic, leaders with MyDirectives are urging Americans to create an advance care plan and share it with their loved ones. With a strain on the U.S. healthcare system and doctors left to make decisions for people with little to no background on the patient, MyDirectives leaders hope people use this time at home with their loved ones to outline their healthcare wishes.
“Advance care planning and having a record of a patient’s health priorities is critically important in terms of helping families navigate through this health crisis and allowing healthcare professionals more flexibility in delivering care during an uncertain time,” said Dr. Brian Yeaman, MyDirectives’ medical director for clinical informatics and workflows. Dr. Yeaman also shared, in a recent segment with CommonWell TV, “At the end of the day, we want better, safer care for our patients, and that’s at the heart of everything that we’re doing.”
“Yes, everyone should wash their hands, keep them off their face, and stay home unless absolutely critical they leave. This global health crisis is a reminder for all of us how we should prepare for a crisis and it absolutely should include creating an advance care plan that can be found by healthcare providers and loved ones in a crisis,” said Jeff Zucker, CEO of MyDirectives. “Most of us will have more time at home with our loved ones. There is no better time to talk about your healthcare wishes than now.”
“MyDirectives provides users with unparalleled freedom to personalize their advance care planning to ensure their health priorities are available to their families and medical professionals,” said Kerry Weems, Former Acting Administrator of the Centers for Medicare and Medicaid Services. “As our lives change, so do our health priorities which is why MyDirectives’ mobile app allows users to update their plan quickly and easily while they’re on the go.”
Information about this 21st-century emergency medical care plan can be found at MyDirectives.com. Everyone over the age of 18 can complete their plan in minutes or take as long as they need to feel confident.
With consumer users in over 40 countries, MyDirectives®, a service of Dallas, Texas-based ADVault, Inc., is the world’s leading all-digital advance care planning platform. MyDirectives lets people create, store, update and share the free MyDirectives digital advance care plan or upload any third-party digital or paper-based advance directive (such as documents from Caring Conversations®, Five Wishes®, the VA form 10-0137 (U.S. Department of Veterans Affairs) advance care plan or portable medical order document. Additional information can be found at MyDirectives.com or this TEDx Talk.
“An advance care plan says, in the event i’m not able to speak for myself here is the treatment course that I would like, and here are the individuals that can speak for me. The great think about advance care planning is it’s moved into the 21st century…Now there’s a way to do it on your smart phone and do it for free. There are companies including MyDirectives.com that allow you to create an advance care plan for yourself, on your smart phone and share it with your loved ones.” Kerry Weems, former acting CMS Administrator on Talk Media News